Surveys

Autism spectrum Disorder and Deafness Study

Gayle Goldstein, M.A. (Ph.D. Candidate) is working with Dr. James Bebko, Professor of Psychology, York University on a research project. The goal of this study is to understand the cognitive, imitation and language abilities of indivudls who have an Autism Spectrum Disorder, who are deaf and those who are deaf and have an Austim Spectrum Disorder. This study hopes to better understand the family perspective by understanding the stressors experienced, the coping resources used to help in providing care for family members, as well as the services sought and received by families. It is hoped that this study can help to provide professionals and parents more information about these individuals, how effective services are, and what is needed by individuals and their families. 

 

Individuals who are Deaf, who are hearing with an Autism Spectrum Disorder, and who are Deaf with an Autism Spectrum Disorder of any age and their families are asked to participate. If you are interested in participating in this study please contact Gayle Goldstein at This email address is being protected from spambots. You need JavaScript enabled to view it. or 416-736-2100 extension 20706 or visit their website at https://bebko.apps01.yorku.ca/clp/ and look under Current Projects. 

Heart Screening for Infants with Hearing Loss in California

Screening for Jervell and Lange-Nielsen Syndrome (JLNS) is a research study to find out if it is possible to identify infants with JLNS at an early age, and to see if early identification of infants with JLNS makes a difference in the infant's lives. 

 

JLNS is a hereditary disorder of the heart's electrical activity known as Long QT Syndrome. JLNS is the most severe form of Long QT Syndrome. JLNS is uncommon, it occurs in aporoximately 1 out of 100,000 people. However, among infants and children with hearing loss, JLNS has been reported to occur as high as 1 - 4% (1 out of 100 to 1 out of 25) of them. 

 

For more information about this study or to participate, please contact Ruey-Kang Chang, MD, MPH, Associate Professor of Pediatrics, UCLA at This email address is being protected from spambots. You need JavaScript enabled to view it. or call 1-877-221-8210 or 310-222-5383 or visit their website at http://infant-heart.com 

Building Math Readiness: Parents as Partners

Parents of deaf and hard of hearing children 3 to 5 years old who live in Connecticut, Rhode Island, or Massachusetts are needed to help create an online program to show parents how to bring basic math into their everyday interactions with their children and to prepare their deaf or hard of hearing children for school. 

 

If you participate you will receive: 

5 online workshops 

$1,000 upon completion of all aspects of the project 

A mini video camera with accessories, webcam, etc. 

Information regarding you child's understanding of math concepts 

Expert advice and guidance to improve your child's learning of math concepts 

Networking with other parents of young deaf and hard of hearing children. 

 

If you particpate you will be asked to: 

participate in 5 online workshops 

Complete brief questionnaires 

Videotape short, natural interactions with your child between workshops 

Maintain online journal or log daily 

Participate in online discussions 

Participate in online meetings using video technology (provided) 

 

If you are interested in participating in this project, please contact Karen Kritzer at This email address is being protected from spambots. You need JavaScript enabled to view it. or Claudia Pagliaro at This email address is being protected from spambots. You need JavaScript enabled to view it.  

Parent of Deaf Children

The Early Language Longitudinal Study (EELS) is now accepting participant for an important study on early language experiences and education literacy. 

They are seeking families with children who are deaf in both ears and between the ages of 3 - 5 years old. All communication modalities accepted. 

For more information visit their website at http://eelsparents.gallaudet.edu 

Deafness and Autism Spectrum Disorders Study

Gayle Goldstein, a PhD student at York University in Toronto, Canada is working on her dissertation and is looking for families interested in participating in a study examining factors that affect language and thinking in three different groups. 

1. Individuals who are deaf 

2. Individuals who are hearing with Autism Spectrum Disorders 

3. Individuals who are deaf with Autism Spectrum Disorders. 

She is also exploring how families of these individuals are coping, what resources they are receiving, and what resources they would like to receive. 

If you are interested in participating in this study please contact Gayle Goldstein at This email address is being protected from spambots. You need JavaScript enabled to view it. or 416-736-2100 extension 58495 or visit her website at https://bebko.apps01.yorku.ca/clp/index.html

The Role of Communication in Developing Attachment in Deaf Children - A Research Study

The aim of this research project is to: 

 

Gain more information about how parents of deaf children seek to communicate with their children. 

 

See if hearing parents who use different communication modalities for language-based communication (ASL, speech, cued speech), use similar non-linguistic communication practices (gestures, facial expression, and body language). 

 

Learn more about the relationship between parent communication modality (ASL, speech, cued speech) and parent non-linguistic communication practices (gestures, facial expression and body language) and a child?s secure attachment. 

 

Families who have at least one deaf children between the ages of 8 and 12 and at least one hearing parent are eligible to participate. 

 

Program participants will be given the opportunity to have receive a $60 gift card or to have a donation made to a deafness-related charity of your choice(please remember ASDC) and the child will receive a $10 gift card. 

 

For more information, contact Roger Williams at the University of South Carolina at (864) 230-4429 (voice) or (803) 807-2701 (video phone) or email him at This email address is being protected from spambots. You need JavaScript enabled to view it.  

About American Society for Deaf Children

We believe deaf or hard-of-hearing children are entitled to full communication access in their home, school, and community. We also believe that language development, respect for the Deaf, and access to deaf and hard-of-hearing role models are important to assure optimal intellectual, social, and emotional development.  Read More


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