Heart Screening for Infants with Hearing Loss in California

Screening for Jervell and Lange-Nielsen Syndrome (JLNS) is a research study to find out if it is possible to identify infants with JLNS at an early age, and to see if early identification of infants with JLNS makes a difference in the infant's lives. 

 

JLNS is a hereditary disorder of the heart's electrical activity known as Long QT Syndrome. JLNS is the most severe form of Long QT Syndrome. JLNS is uncommon, it occurs in aporoximately 1 out of 100,000 people. However, among infants and children with hearing loss, JLNS has been reported to occur as high as 1 - 4% (1 out of 100 to 1 out of 25) of them. 

 

For more information about this study or to participate, please contact Ruey-Kang Chang, MD, MPH, Associate Professor of Pediatrics, UCLA at This email address is being protected from spambots. You need JavaScript enabled to view it. or call 1-877-221-8210 or 310-222-5383 or visit their website at http://infant-heart.com 

About American Society for Deaf Children

We believe deaf or hard-of-hearing children are entitled to full communication access in their home, school, and community. We also believe that language development, respect for the Deaf, and access to deaf and hard-of-hearing role models are important to assure optimal intellectual, social, and emotional development.  Read More


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